Tag

Down syndrome

Browsing

Diana Elliot was feeling overwhelmed when she left her 14-year-old son Sheldon, who has down syndrome, at Grady Memorial Hospital in Atlanta. She was arrested on Wednesday and charged with first-degree child cruelty.

Elliot was granted a signature bond Thursday in lieu of the $10,000 payment by a judge, WXIA’s Kaitlyn Ross reported. She was also granted a new support system, full of people she had never even met.

“Diana turned around and gasped when she saw them in the courtroom,” Ross posted on Facebook. “She had never met any one of these women and started crying when she realized they were there to support her.”

Other mothers who understand how she was feeling, showed up to court for her.

When the assistant district attorney asked Elliot where she would be living if released, Carla Griffin raised her hand.

“She will live with me. We are family now,” she said.

Griffin had a similar experience to Elliot 10 years ago, when she too left her 17-year-old special needs son at the hospital.

Elliot also found encouragement in the courtroom through the organization Black Mama’s Bail Out, who according to Ross, was willing to pay any expense it would take to get her out of jail. Other mothers with children who have down syndrome were also found in court supporting Elliot.

“This isn’t just today. We are not leaving her. We are not leaving this family. We are in this for the long haul,” said Sheryl Arno, Executive Director of the Down Syndrome Association of Atlanta.

The association has set up a donations fund for Sheldon, Elliot and their family.

The 37-year-old left the eldest of her four children outside the hospital in a red minivan on December 4, reports The Washington Post. A nurse noticed the nonverbal teenager while on her break, Lieutenant Jeff Baxter said Tuesday in a press conference. After days of searching, police finally found who left Sheldon.

The single mother was living out of a hotel in DeKalb County at the time.

“She indicated that there were a lot of things going on in her life that were making it hard for her to support her family,” Baxter said. “She just kind of felt like she could no longer care for her kids.”

Baxter said there are certain responsibilities that come with raising a child, but he also could not imagine the difficulties in raising a special needs child.

Before her arrest, Elliot had no prior record. Her children were placed in the care of the Department of Children and Family Services.

Macon defense attorney, Brian Jarrad, represented her pro bono. He too raises three children with down syndrome.

The Department of Children and Families still has custody of her children. Until she regains custody, she will be able to see them if and only when the department allows, reports CBS 46.

Source: blavity.com

 

This actor and campaigner’s story is an inspiring one.

Sarah Gordy, 40, with Down Syndrome has become the first person with the condition to receive an honorary degree from a UK university.

The University of Nottingham on Wednesday honoured Sarah with a Doctor of Laws degree at a ceremony at University Park campus.

Sarah had earlier in November, became the first woman with Down Syndrome to be made an MBE.

She’s starred in British TV show “Call The Midwife” and is a very active campaigner for people with learning disability.

“If I believed all the things that people said I couldn’t do, I would not have done any [dancing, acting and campaigning],” she said during her acceptance speech

She adds: “Don’t listen to doubt… believe in yourselves.”

Sarah’s mother, Jane Gordy said of her daughter: “As far as I was concerned Sarah was going to have every experience there is and if she wants to do something, just do it.”

Watch Sarah below:

 

 

Source:Bellanaija

 

 

 

Adetola Makinde, Founder; Mo Rainbow Foundation

Adetola Makinde is a B.Sc. holder in Business Management from Usman Danfodio University. She is the founder of Mo Rainbow Foundation and Mo Rainbow Down syndrome Ability Centre, which are both non-profit organisations. She left her banking career to be a full-time mom, after she gave birth and her daughter was diagnosed with the Down syndrome.

In this interview with Women Of Rubies, Adetola Makinde shares a touching and inspiring story of how her life changed after her daughter, Moyinoluwa, came into the world with Down syndrome, and the inspiration behind Mo Rainbow Foundation.

Growing Up
As the first child of my parents, I’ve always been saddled with the responsibility of taking care of my siblings and being a good example to them. I grew up in a family, where cousins and relatives came on holidays or resided with us. I’ve lost count of the number of people my parents trained and supported from childhood through school and work, up until they got married. My parents were very accommodating and they taught me how to be content and responsible. They are great givers and all these formed a greater part of my core values, as I grew up being a giver, who also loves making people happy.

More About Me
My name is Adetola Makinde. Some people I’ve known for over three decades call me Sola. I love to be called TM. In my primary school days, I remember secretly coveting the name ‘Precious,’ as I used to wonder why my parents did not give me an English name. I am from Ikare-Akoko in Ondo State and the first of three children. I started my education with Stee international School, (popularly known as Subuola Nursery and Primary School back in1978). I attended FGGC Bida for a while before crossing over to Federal Government Girls College, Shagamu, in Ogun State. I later obtained a B.Sc. in Business Management from Usman Danfodio University, Sokoto.

My first job was with the United Bank of Africa Plc, and I worked in the corporate banking sector, and five other branches of this great organisation for 11 years, until I had my daughter in 2011.

Resigning from Banking Career to Follow Her Passion
I figured God was trying to change my career path, even though I loved working in the banking sector. God in heaven must have said, “Hey girl, it is time to move unto a greater assignment.” So, it happened that I had my baby in 2011 and about five days later, she was diagnosed with Down syndrome. This of course came as a rude shock and instead of resuming after my maternity leave, I tendered my resignation letter. I was about to dance to a different type of music, one people don’t like dancing, which is caring for my daughter. I had a prior knowledge and exposure to the condition and I knew I would not be able to cope with the responsibilities at work, as I had been given a higher role to play. I was just too sure that “returning to work would not work for me”.

I had prayed to have a baby girl and my prayers were answered in a miraculous way that has now birthed a purpose for my life. My little bundle, which initially caused me pain, had God’s purpose for my life, wrapped in that pain which has now turned to passion. For the life of me, I couldn’t believe my career would come to an end, but who am I to complain? It was a very tough decision coupled with sleepless nights, heart racing moments because of fear of the unknown. I had to be brave and just sacrifice for my children, more so, it hit home and I had to start running around to ensure my daughter had all the medical help and therapy that would save her life. God was there for me and I just could still see through a window how merciful and faithful He still is through my pain. I knew I was faced with a herculean task of caring for a vulnerable child, who is a blessing in disguise. I knew the benefits my baby would derive from early support. The first three years in the life of children, especially those with additional needs are very crucial and I told myself I would give my baby all the best care and support that I could and leave the rest for God.

Inspiration behind Mo Rainbow Foundation
The name Mo is Moyin’s nickname and the Rainbow was a name God gave me. We had put in another name and followed up with CAC to conclude the search, but the name was not approved because the whole process lasted longer than three months. One very cold morning, before daybreak, I woke up to use the bathroom and I heard a voice saying, “Look up, what do you see in the sky?” While I was still trying to think, I heard the answer “Rainbow”. I was transfixed and immediately sent a text to my lawyer and in two weeks, the name Moyinoluwa Rainbow Foundation was released and approved. The rainbow signifies hope and God’s promise, after the flood that destroyed the earth. It gives our children hope to live again. The fact that you have a child with a certain form of additional needs is not the end of the world. There is life after a Down syndrome diagnosis; it’s not the end of the world.

The inspiration behind Mo Rainbow began after my initial frustration of not getting early intervention. God gave me this vision one day in my living room, after Moyin turned three and I could only look back and appreciate God even more, as we had moved from struggles (with feeding, crawling, standing, walking, talking, heart surgery) to success. I met a two-year-old boy in church, who had never had any form of intervention and this tore me apart. That night, as I sat on my bed, folding my clothes, I heard a voice saying, “now you see you’re not alone. Go out and minister to these children. Be the light, be the solution, show and share the benefits of early intervention and all I’ve exposed you to”.

That night, I wept like a baby, knowing I was about to go through a path I never imagined. I followed up with the little boy, and today, Victor has turned four and with care and constant therapy, he is happy and improving gradually. This vision was confirmed by two people close to my heart, whom I never discussed my vision with at the early state, as I wanted clarity on this matter without prejudice.

The short of it is that I was blessed to have had help with early intervention from when Moyin was two weeks old, as I would be in the room with her till 1pm every day, trying to understand her body, features and help her with various exercises and oral motor massages. Frankly, I never cared about scornful looks, as I had keyed into early intervention and wouldn’t let go. My grits was eventually passed on to Moyin, as she became a fighter with every passing day. She learnt to be confident with the support friends and family daily gave her.

On Family Support
Well, all through this journey, my husband supported me. He was and is still there for us all. Our little Mo gives him so much joy. It was also with his consent that I left my job, as we both knew that working in the bank would divide my attention in caring for our daughter.

My Reaction on Being a Recipient of the Wise Women Awards
The award given to me is called “THE TURNAROUND AWARD”. I was overwhelmed with joy and that quickly ministered to me that finding purpose is fulfilling, and focusing on your vision over ambition is rewarding. I really appreciate Pastor Mrs. Majorie Esomowei, the founder, the wise Women international, Wise women Awards UK and Nigeria, for creating this wonderful platform. I believe your ministry does not have to be in church before God blesses you. He simply makes provision for every vision. I appreciate everyone supporting us, following us on social media channels and watching us. It’s a life changing experience for me.

Other Projects and Activities
We are on a rescue mission and I find it heart wrenching, when I discover that a child has not had the relevant support from birth, because of our weak support system. The story I hear is always either the parent has refused to seek the right help, kept the child at home and prevented him or her from mingling with others, has taken their child from one mountain to another seeking for deliverance with some voodooist or wishing the child away or dead.

Due to the high rate of ignorance of this condition, we have had a 5km walk for Down syndrome, where over 100 people came out to step for Down syndrome, creating awareness in Amuwoodofin Local Government Area. Our open-house party was to create awareness in the media and around our community. We have had “CANDID TALK ON DOWN SYNDROME,” where we invite parents to come and learn how to support their children/wards because it involves a back-to-back intervention. We also invite caregivers and therapists to learn how to support any child in their care. Sharing ideas helps us to take the right steps, when faced with difficult times with the child. It helps us to be pro-active.

We would frequently gather parents to enable them have Skype sessions and physical sessions with our consultants. We would also be partnering with Star of Hope Transformation Foundation, a foundation that turns ‘Trash into Treasure,” the Down syndrome foundation of Nigeria and other organisations that would project our work with children living with Down syndrome. Presently, Breakforth Women Outreach (Nigeria and Ireland), Women of faith Foundation (UK), LOJ logistics (NIG), Africa’s Unforgotten Angels (USA), SoksesJewelery (UK), Adoke resources (Nig.), are partnering with us in various ways and we are still hopeful for more partnership and support from other organisations and individuals. I will do my best to give hope to children faced with this condition. Not being much of tech savvy, I have found myself creating awareness on various social media platforms about this cause and God has brought many friends our way all over the world via these channels, though we are yet to get our first support from any organisation.

On Whether Nigerians are Compassionate Enough to Children with Down Syndrome
We are far from it. I once posted my daughter’s picture on Instagram and received a derogatory comment I had to delete. I wept that day, because it made me realise people’s ignorance and it made me more determined to advocate for every child and adult living with Down syndrome. Something good will come of them, because they are made in God’s image and likeness. Down Syndrome can visit any family, but it’s what you do with it that matters. I will keep fighting for inclusion for our children and there is no looking back. The society needs to understand that advocates of all forms of disability in Nigeria need them to listen and contribute their quota, as much as they can. I see our children living happily without any form of stigma or name-calling. One of our objectives is to ensure the on-going stigmatisation children face is stopped.

I Am A Woman Of Rubies
I believe answering this call has paved a way for a bright future for children living with this life-long condition. I am fulfilled, because families that are angry with God or the child, thinking He is angry with them can now realise they are wrong.  When at the end of each day I see parents showing more love to their child, I know I can sleep with both eyes closed, because through me, a strong bond has been built between them and the child is sure of their total support.